The UK Charity for TNBC
Patient Advisory Panel
What is The Patient Advisory Panel (PAP)?
The UK Triple Negative Breast Cancer (TNBC) Patient Advisory Panel (PAP) brings together individuals with lived experience of TNBC to help shape the future of TNBC care, by influencing research, improving patient support, and raising awareness of the challenges unique to this diagnosis.
How the Patient Advisory Panel amplifies TNBC patient voices
In this video, Patient Advisory Panel (PAP) Coordinator Katherine and charity founder Robin Woolcock discuss how the PAP gives people affected by TNBC a voice to help shape TNBC research, treatment development, healthcare policy and the future of TNBC care.
What to expect as a PAP member
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Informing
We share our stories because together this builds a valuable understanding and insights, not just for others with TNBC and their carers, but also for healthcare professionals.
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Educating
Our lived experience can bring so many benefits to others – giving them not just deeper knowledge to actively participate in and take control of their care but the confidence from feeling they’re no longer on their own – there is a whole community of us who understand.
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Listening
As PAP members we listen to each other’s perspectives. We want to support others with TNBC and help them express their feelings about it. We know that each of us has a unique and highly personal experience.
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Advocating
As PAP members, each of us has a role to play in talking about TNBC, and contributing to increased awareness and understanding so that in the future anyone diagnosed with TNBC is better informed.
How to become a member of the Patient Advisory Panel (PAP)
If you have a lived experience of Triple Negative Breast Cancer and are passionate about making a difference, The UK Charity for TNBC is delighted to invite you to join the Patient Advisory Panel (PAP). It is the charity’s objective to create a Panel which gives a ‘Voice to the Experts’, those living with a TNBC diagnosis.
To join the Patient Advisory Panel (PAP), please contact us:
As a panel member you will be asked your views on many matters including those relating to your personal experience through diagnosis, treatment, Quality of Life and more.
Information gathered will be utilised in our engagement with key Partners including RCNi and NICE, and to educate and enthuse all Breast Care specialists throughout the NHS and private sector. Additionally, we want to ensure that the Government’s soon to be published ‘Plan for Cancer’ meets the needs of people with TNBC’.
Our PAP team
Katherine Gaylard
Patient Advisory Panel - Coordinator
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Hi, I’m Katherine 👋 Wife, mum of two, finance professional for 30 years, and now a passionate advocate raising awareness of Triple Negative Breast Cancer (TNBC), whilst coordinating the Patient Advisory Panel (PAP) for The UK Charity for TNBC.
In June 2023, my world shifted after a routine breast screening revealed I had TNBC, a rare and challenging form of breast cancer that few seemed to know much about. The lack of information and support in those early days was as overwhelming as the diagnosis itself.
Treatment was intense…surgery, chemotherapy, radiation and came with long-lasting side effects, including neuropathy that delayed my return to work. But it also brought clarity: TNBC patients need more. More research, more awareness, more tailored support.
I began connecting with others in the same situation. At a roundtable event hosted by The UK Charity for TNBC and RCNi at Maggie’s Centre Sutton, I realised that I wasn’t alone, and that more needed to be done.
That led me to Future Dreams where I met the incredible Robin Woolcock, founder of The UK Charity for TNBC. We connected, and shortly afterward, I was invited to help build the Patient Advisory Panel (PAP).
Today, I’m back to work full time and proudly part of the passionate and forward-thinking volunteer team at The UK Charity for TNBC working to raise awareness, influence and advocate for real change in TNBC care. Together, we’re engaging with RCNi, NICE, pharmaceutical companies and partner charities to ensure TNBC patients are heard and supported.
We are at the start of something truly meaningful. If you’re interested in getting involved, supporting our mission, or simply want to find out more, please reach out. Let’s make a difference, together.
Jane Rogerson-Gleave
Patient Advisory Panel - Support Partner
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Jane was diagnosed with Triple Negative in 2024 after having previously had ER2 positive breast cancer in 2018.
With a background in communications in higher education and the public sector, Jane is hoping to use both her career and more recently breast cancer experience to support other women with breast cancer - especially those facing a Triple Negative diagnosis.
“Having been diagnosed twice and also having been through an array of side effects including ongoing Lymphodoema, I know how important it is for all of us to have access to the specialist information we need.
That’s why I’m so delighted to be supporting the UK Charity for Triple Negative Breast Cancer - I can see the real impact the charity is making and we all have the opportunity to contribute through the PAP - brilliant to see our voices being listened to!”
The latest news
We are proud to share News Highlights that reflect the meaningful impact of the Patient Advisory Panel. Members of the panel have actively engaged in key initiatives, helping to shape national conversations, influence research agendas, and ensure the patient voice is central to everything we do.
These highlights demonstrate how lived experience is not only being heard but is driving real change across policy, support services, and awareness efforts.
