The UK Charity for TNBC’s

Patient Advisory Panel

PAP News ➔

Our PAP Team ➔

What is The Patient Advisory Panel (PAP)?

The UK Triple Negative Breast Cancer (TNBC)’s Patient Advisory Panel (PAP) brings together individuals with lived experience of TNBC to help shape the future of TNBC care, by influencing research, improving patient support, and raising awareness of the challenges unique to this diagnosis.

The Patient Advisory Panel (PAP)’s Objectives and Values

  • Informing

    Distributing clear, accurate TNBC information in every cancer hospital, clinic, and waiting room across the UK.

  • Educating

    Hosting specialist TNBC webinars to train TNBC Breast Nurse Champions, equipping healthcare professionals with the knowledge to improve care.

  • Advocating

    Representing the TNBC community at leading medical conferences like ESMO, to raise visibility and push for better recognition, treatment pathways, and research.

  • Listening

    Ensuring that all our work is shaped by our Patient Advisory Panel (PAP), made up of individuals with lived experience of TNBC.

How to Become a Member of the Patient Advisory Panel (PAP)

If you have a lived experience of Triple Negative Breast Cancer and are passionate about making a difference, The UK Charity for TNBC is delighted to invite you to join the Patient Advisory Panel (PAP). It is the charities objective to create a Panel which gives a ‘Voice to the Experts’, those living with a TNBC diagnosis. 

To join the Patient Advisory Panel (PAP), please contact us:

As a panel member you will be asked your views on many matters including those relating to your personal experience through diagnosis, treatment, Quality of Life and more.

Information gathered will be utilised in our engagement with key Partners including RCNi and NICE, and to educate and enthuse all Breast Care specialists throughout the NHS and private sector. Additionally ensuring that the Government’s soon to be published ‘Plan for Cancer’ meets the needs of people with TNBC’.

Our PAP Team

Jane Rogerson-Gleave

Volunteer PAP Coordinator

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Katherine Gaylard

Volunteer PAP Coordinator

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The Latest News

We are proud to share News Highlights that reflect the meaningful impact of the  Patient Advisory Panel. Members of the panel have actively engaged in key initiatives, helping to shape national conversations, influence research agendas, and ensure the patient voice is central to everything we do.

These highlights demonstrate how lived experience is not only being heard but is driving real change across policy, support services, and awareness efforts.

News
Robin Woolcock joins LACE Partners’ podcast to highlight the workplace impact of TNBC
Robin Woolcock joins LACE Partners’ podcast to highlight the workplace impact of TNBC

Robin Woolcock, founder of the UK Charity for Triple Negative Breast Cancer, joins LACE Partners’ podcast to raise awareness of TNBC and spark vital conversations about how workplaces can better support those affected.

The Patient Voice helps guide BioNTech design for UK Drug Trial 
The Patient Voice helps guide BioNTech design for UK Drug Trial 

The UK Charity for Triple Negative Breast Cancer (TNBC) recently asked our Patient Advisory Panel (PAP) members a series of important questions on behalf of the pharmaceutical company BioNTech. Their answers provided critical information which will now be used by BioNTech to help inform the design of a trial for an investigational drug intended for people with the metastatic form of TNBC. 

Charity helps NICE (the National Institute for Health and Care) to recommend new treatment for people with TNBC
Charity helps NICE (the National Institute for Health and Care) to recommend new treatment for people with TNBC

New NICE guidance on TNBC treatment reflects input from The UK Charity for TNBC’s Patient Advisory Panel (PAP). Your involvement is helping to shape more effective care for those affected by TNBC.

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